Rare or as they are sometimes called orphan diseases are those conditions which affect only a small percent of the population, therefore those suffering from thses conditions will lack the usualsupport and networking available for more common conditions. This site offers a solution, in part, to that aspect of rare disease.

This site is divided into communities. You join by registering through one of the communities. When you join you are automatically made friends with everyone already in that community. Unlike other social networks, this site focus on the inclusivity of commonality, rather than exclusivity. You join to connect with people sharing similar experiences, therefore you do not need to wait to find them, you'll already be connected once you join.

If you have connections to more than one rare disease, you can also join an additional community using the "Join Another Community" link.


If you represent a media company, are a student writing a report or anyone interested in interviewing our visitors, please seek permission before posting your requests or emailing solicitations for any talk show, magazine, thesis, census or other interview on any Community on this site. Please respect the privacy of our members. Page has been viewed 22 times..