Statement of Rights and Responsibilities:

This Statement of Rights and Responsibilities ("Statement," "Terms," or "SRR") is our terms of service that governs our relationship with users and others who interact with The Congenital Adrenal Hyperplasia Social Network. By using or accessing The Congenital Adrenal Hyperplasia Social Network, you agree to this Statement, as updated from time to time.

Privacy:

Your privacy is very important to us. We designed our Data Use Policy to make important disclosures about how you can use The Congenital Adrenal Hyperplasia Social Network to share with others and how we collect and can use your content and information.

Sharing Your Content and Information:

You own all of the content and information you post on The Congenital Adrenal Hyperplasia Social Network, and you can control how it is shared through your privacy and application settings. In addition:

For content that is covered by intellectual property (IP) rights, like photos and videos (IP content), you specifically give us the following permission, subject to your privacy and application settings: you grant us a non-exclusive, transferable, sub-licensable, royalty-free, worldwide license to use any IP content that you post on or in connection with The Congenital Adrenal Hyperplasia Social Network (IP License). This IP License ends when you delete your IP content or your account unless your content has been shared with others, and they have not deleted it.

When you delete IP content, it is deleted in a manner similar to emptying the recycle bin on a computer. However, you understand that removed content may persist in backup copies for a reasonable period of time (but will not be available to others).

When you publish content or information using the Public setting, it means that you are allowing everyone, including people off of The Congenital Adrenal Hyperplasia Social Network, to access and use that information, and to associate it with you (i.e., your name and profile picture).

We always appreciate your feedback or other suggestions about The Congenital Adrenal Hyperplasia Social Network, but you understand that we may use them without any obligation to compensate you for them (just as you have no obligation to offer them)

Ownership In and To The Site and Services:

Other than User Content, we own or license all right, title, and interest in and to (a) the Site and Services, including all software, text, media, and other content available on the Site and Services ("The Congenital Adrenal Hyperplasia Social Network Content"); and (b) The Congenital Adrenal Hyperplasia Social Network's trademarks, logos, and brand elements ("Marks"). The Site and Services, The Congenital Adrenal Hyperplasia Social Network Content, and Marks are all protected under U.S. and international laws.

Other Provisions:

Under no circumstances will The Congenital Adrenal Hyperplasia Social Network be held liable for any delay or failure in performance due in whole or in part to any acts of nature or other causes beyond its reasonable control.

Safety:

We do our best to keep The Congenital Adrenal Hyperplasia Social Network safe, but we cannot guarantee it. We need your help to keep The Congenital Adrenal Hyperplasia Social Network safe, which includes the following commitments by you:

• You will not post unauthorized commercial communications (such as spam) on The Congenital Adrenal Hyperplasia Social Network.

• You will not collect users' content or information, or otherwise access The Congenital Adrenal Hyperplasia Social Network, using automated means (such as harvesting bots, robots, spiders, or scrapers) without our prior permission.

• You will not engage in unlawful multi-level marketing, such as a pyramid scheme, on The Congenital Adrenal Hyperplasia Social Network.

• You will not upload viruses or other malicious code.

• You will not solicit login information or access an account belonging to someone else.

• You will not bully, intimidate, or harass any user.

• You will not post content that: is hate speech, threatening, or pornographic; incites violence; or contains nudity or graphic or gratuitous violence.

• You will not develop or operate a third-party application containing alcohol-related, dating or other mature content (including advertisements) without appropriate age-based restrictions.

• You will follow our Promotions Guidelines and all applicable laws if you publicize or offer any contest, giveaway, or sweepstakes (“promotion” on The Congenital Adrenal Hyperplasia Social Network.

• You will not use The Congenital Adrenal Hyperplasia Social Network to do anything unlawful, misleading, malicious, or discriminatory.

• You will not do anything that could disable, overburden, or impair the proper working or appearance of The Congenital Adrenal Hyperplasia Social Network, such as a denial of service attack or interference with page rendering or other The Congenital Adrenal Hyperplasia Social Network functionality.

• You will not attempt to circumvent any technological measure implemented by The Congenital Adrenal Hyperplasia Social Network or any of The Congenital Adrenal Hyperplasia Social Networks' providers or any other third party (including another user) to protect the Site or Services.

• You will not attempt to decipher, decompile, disassemble, or reverse engineer any of the software used to provide the Site or Services.

• You will not facilitate or encourage any violations of this Statement or our policies.

Registration and Account Security:

Owing to the nature of the way people associated with Rare Diseases prefer to communicate we do not require users to provide their real names. However to maintain consistent communication we do ask that you choose a user name that is at least somewhat unique (please do not use "Anonymous"). If you do not wish to use your real name, then simply choose a name at random and preferably an initial and use that. Here are some commitments you make to us relating to registering and maintaining the security of your account:

• You will not provide any false personal information on The Congenital Adrenal Hyperplasia Social Network, or create an account for anyone other than yourself without permission.

• You will not create more than one personal account.

• If we disable your account, you will not create another one without our permission.

• You will not use your personal timeline for your own commercial gain (such as selling your status update to an advertiser).

• You will not use The Congenital Adrenal Hyperplasia Social Network if you are under 13.

• You will not use The Congenital Adrenal Hyperplasia Social Network if you are a convicted sex offender.

• You will keep your contact information accurate and up-to-date.

• You will not share your password (or in the case of developers, your secret key), let anyone else access your account, or do anything else that might jeopardize the security of your account.

• You will not transfer your account (including any Page or application you administer) to anyone without first getting our written permission.

• If you select a username or similar identifier for your account or Page, we reserve the right to remove or reclaim it if we believe it is appropriate (such as when a trademark owner complains about a username that does not closely relate to a user's actual name).

Protecting Other People's Rights:

We respect other people's rights, and expect you to do the same.

• You will not post content or take any action on The Congenital Adrenal Hyperplasia Social Network that infringes or violates someone else's rights or otherwise violates the law.

• We can remove any content or information you post on The Congenital Adrenal Hyperplasia Social Network if we believe that it violates this Statement or our policies.

• If we remove your content for infringing someone else's copyright, and you believe we removed it by mistake, we will provide you with an opportunity to appeal.

• If you repeatedly infringe other people's intellectual property rights, we will disable your account when appropriate.

• You will not use our copyrights or trademarks (including The Congenital Adrenal Hyperplasia Social Network, the The Congenital Adrenal Hyperplasia Social Network and Logos, or any confusingly similar marks, except as expressly permitted by our Brand Usage Guidelines or with our prior written permission.

• If you collect information from users, you will: obtain their consent, make it clear you (and not The Congenital Adrenal Hyperplasia Social Network) are the one collecting their information, and post a privacy policy explaining what information you collect and how you will use it.

• You will not post anyone's identification documents or sensitive financial information on The Congenital Adrenal Hyperplasia Social Network.

• You will not tag users or send email invitations to non-users without their consent. The Congenital Adrenal Hyperplasia Social Network offers social reporting tools to enable users to provide feedback about tagging.

Conditions For Use:

You agree to abide by all applicable local, state, national and international laws and regulations and are solely responsible for all acts or omissions that occur under your account made by you

Indemnity:

By accepting these Terms of Service, you agree to indemnify and otherwise hold harmless The Congenital Adrenal Hyperplasia Social Network, its officers, employees, agents, subsidiaries, affiliates and other partners from any direct, indirect, incidental, special, consequential or exemplary damages resulting from i) your use of The Congenital Adrenal Hyperplasia Social Network ii) unauthorized access to or alteration of your communications with or through The Congenital Adrenal Hyperplasia Social Network, or iii) any other matter relating to The Congenital Adrenal Hyperplasia Social Network.

You expressly understand and agree that we shall not be liable for any direct, indirect, incidental, special, consequential, or exemplary damages, including but not limited to, damages for loss of profits, goodwill, use, data or other intangible losses (even if we have been advised of the possibility of such damages). Some jurisdictions do not allow the exclusion of liability for incidental or consequential damages. Accordingly, some of the above limitations may not apply to you. In no event will our total cumulative liability exceed US $10.00.

Termination:

If you violate the letter or spirit of this Statement, or otherwise create risk or possible legal exposure for us, we can stop providing all or part of The Congenital Adrenal Hyperplasia Social Network to you. We will notify you by email or at the next time you attempt to access your account. You may also delete your account or disable your application at any time.

Disputes:

You will resolve any claim, cause of action or dispute (claim) you have with us arising out of or relating to this Statement or The Congenital Adrenal Hyperplasia Social Network exclusively in a state or federal court located in Rogers County Oklahoma. The laws of the State of Oklahoma will govern this Statement, as well as any claim that might arise between you and us, without regard to conflict of law provisions. You agree to submit to the personal jurisdiction of the courts located in Rogers County Oklahoma for the purpose of litigating all such claims.

If anyone brings a claim against us related to your actions, content or information on The Congenital Adrenal Hyperplasia Social Network, you will indemnify and hold us harmless from and against all damages, losses, and expenses of any kind (including reasonable legal fees and costs) related to such claim. Although we provide rules for user conduct, we do not control or direct users' actions on The Congenital Adrenal Hyperplasia Social Network and are not responsible for the content or information users transmit or share on The Congenital Adrenal Hyperplasia Social Network. We are not responsible for any offensive, inappropriate, obscene, unlawful or otherwise objectionable content or information you may encounter on The Congenital Adrenal Hyperplasia Social Network. We are not responsible for the conduct, whether online or offline, or any user of The Congenital Adrenal Hyperplasia Social Network.

WE TRY TO KEEP THE RARE DISEASE SOCIAL NETWORK UP, BUG-FREE, AND SAFE, BUT YOU USE IT AT YOUR OWN RISK. WE ARE PROVIDING THE RARE DISEASE SOCIAL NETWORK AS IS WITHOUT ANY EXPRESS OR IMPLIED WARRANTIES INCLUDING, BUT NOT LIMITED TO, IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, AND NON-INFRINGEMENT. WE DO NOT GUARANTEE THAT THE RARE DISEASE SOCIAL NETWORK WILL ALWAYS BE SAFE, SECURE OR ERROR-FREE OR THAT THE RARE DISEASE SOCIAL NETWORK WILL ALWAYS FUNCTION WITHOUT DISRUPTIONS, DELAYS OR IMPERFECTIONS. THE RARE DISEASE SOCIAL NETWORK IS NOT RESPONSIBLE FOR THE ACTIONS, CONTENT, INFORMATION, OR DATA OF THIRD PARTIES, AND YOU RELEASE US, OUR DIRECTORS, OFFICERS, EMPLOYEES, AND AGENTS FROM ANY CLAIMS AND DAMAGES, KNOWN AND UNKNOWN, ARISING OUT OF OR IN ANY WAY CONNECTED WITH ANY CLAIM YOU HAVE AGAINST ANY SUCH THIRD PARTIES. OUR AGGREGATE LIABILITY ARISING OUT OF THIS STATEMENT OR THE RARE DISEASE SOCIAL NETWORK WILL NOT EXCEED THE GREATER OF ONE HUNDRED DOLLARS ($100) OR THE AMOUNT YOU HAVE PAID US IN THE PAST TWELVE MONTHS. APPLICABLE LAW MAY NOT ALLOW THE LIMITATION OR EXCLUSION OF LIABILITY OR INCIDENTAL OR CONSEQUENTIAL DAMAGES, SO THE ABOVE LIMITATION OR EXCLUSION MAY NOT APPLY TO YOU. IN SUCH CASES, THE RARE DISEASE SOCIAL NETWORK'S LIABILITY WILL BE LIMITED TO THE FULLEST EXTENT PERMITTED BY APPLICABLE LAW.

Special Provisions Applicable to Users Outside the United States:

We strive to create a global community with consistent standards for everyone, but we also strive to respect local laws. The following provisions apply to users and non-users who interact with The Congenital Adrenal Hyperplasia Social Network outside the United States:

You consent to having your personal data transferred to and processed in the United States.

If you are located in a country embargoed by the United States, or are on the U.S. Treasury Department's list of Specially Designated Nationals you will not engage in commercial activities on The Congenital Adrenal Hyperplasia Social Network (such as advertising or payments) or operate a Platform application or website.

Certain specific terms that apply only for German users are available here.

Definitions:

By "The Congenital Adrenal Hyperplasia Social Network" we mean the features and services we make available, including through (a) our website at RareDisease.org, all subdomains and any other The Congenital Adrenal Hyperplasia Social Network branded or co-branded websites (including sub-domains, international versions, widgets, and mobile versions); (b) our Platform; (c) social plugins such as the Like button, the Share button and other similar offerings and (d) other media, software (such as a toolbar), devices, or networks now existing or later developed.

By "Platform" we mean a set of APIs and services (such as content) that enable others, including application developers and website operators, to retrieve data from The Congenital Adrenal Hyperplasia Social Network or provide data to us.

By "information" we mean facts and other information about you, including actions taken by users and non-users who interact with The Congenital Adrenal Hyperplasia Social Network.

By "content" we mean anything you or other users post on The Congenital Adrenal Hyperplasia Social Network that would not be included in the definition of information.

By "data" or "user data" or "user's data" we mean any data, including a user's content or information that you or third parties can retrieve from The Congenital Adrenal Hyperplasia Social Network or provide to The Congenital Adrenal Hyperplasia Social Network through Platform.

By "post" we mean post on The Congenital Adrenal Hyperplasia Social Network or otherwise make available by using The Congenital Adrenal Hyperplasia Social Network.

By "use" we mean use, copy, publicly perform or display, distribute, modify, translate, and create derivative works of.

By "active registered user" we mean a user who has logged into The Congenital Adrenal Hyperplasia Social Network at least once in the previous 30 days.

By "application" we mean any application or website that uses or accesses Platform, as well as anything else that receives or has received data from us. If you no longer access Platform but have not deleted all data from us, the term application will apply until you delete the data.

Other:

If you are a resident of or have your principal place of business in the US or Canada, this Statement is an agreement between you and The Congenital Adrenal Hyperplasia Social Network. References to “us,” “we,” and “our” mean either The Congenital Adrenal Hyperplasia Social Network.

This Statement makes up the entire agreement between the parties regarding The Congenital Adrenal Hyperplasia Social Network, and supersedes any prior agreements.

If any portion of this Statement is found to be unenforceable, the remaining portion will remain in full force and effect.

If we fail to enforce any of this Statement, it will not be considered a waiver.

Any amendment to or waiver of this Statement must be made in writing and signed by us.

You will not transfer any of your rights or obligations under this Statement to anyone else without our consent.

All of our rights and obligations under this Statement are freely assignable by us in connection with a merger, acquisition, or sale of assets, or by operation of law or otherwise.

Nothing in this Statement shall prevent us from complying with the law.

This Statement does not confer any third party beneficiary rights.

We reserve all rights not expressly granted to you.

You will comply with all applicable laws when using or accessing The Congenital Adrenal Hyperplasia Social Network.

You may also want to review the following documents, which provide additional information about your use of The Congenital Adrenal Hyperplasia Social Network:

Privacy Policy: The Provacy Policy contains information to help you understand how we collect and use information.

Your Consent :

By using our site, you consent to our terms of service policy.

Changes to our terms of service:

If we decide to change our terms of service, we will post those changes on this page, and/or update the Privacy Policy modification date below.

Modified: February 8th 2013 • Page has been viewed 11 times..